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And Life Goes On...An Angel and a Rainbow
A blog about the grief after losing a child to Niemann Pick, Type C, a rare disease, and how I'm moving forward with my life.
Tuesday, April 1, 2014
April Fools Day!
You thought I forgot to write something today?
April Fool!
So did you pull an April Fool prank today? Or have one pulled on you?
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Jill Flinton
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Diagnosing Niemann Pick Type C
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National Niemann Pick Disease Foundation
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Rare Disease Awareness Feb 2014
NPD Awareness Oct 2013
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National Grief Awarenss Day - Aug 30
WSJ Article on NPC Research
The Right Way to Grieve
One Word
This month's Top 5 Posts
One year ago...
...I lost my son, my baby, my boy. My husband wrote these beautiful words on his Facebook page last month: It has been 11 months tod...
Christmas Week 5 for 5
It's Monday! That means a new installment of 5 for Five with Jenn and Jessica ! See the blogs participating by clicking on the button ...
Another year
We just returned from the most recent NNPDF Family Support and Medical Conference. This year we were in Danvers, MA. Every year I...
New Year, New Word
Late last year, I saw a series of words from friends on Facebook and a link . After the difficult year I had last year, I wanted to focus...
Summary of October Niemann Pick Disease Awareness Posts
October was Niemann-Pick Disease Awareness Month. Here is a recap of my posts: Angels Another NPC Angel An NPC Angel Niemann...
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I love hearing from my readers. Please leave a comment to let me know you stopped by. :-)