A blog about the grief after losing a child to Niemann Pick, Type C, a rare disease, and how I'm moving forward with my life.

Wednesday, April 30, 2014

Brothers

A Shutterfly photobook of the 3 brothers:



Turn your favorite photos into a photo book at Shutterfly.com.

Monday, April 28, 2014

5 for Five - April 28



So what is 5 For Five? In the short form, it is 5 goals you want to achieve this week. Next week, I will report on my success (or failure).

Here were the goals from last week:

Sunday, April 27, 2014

Happy Birthday Daddy

Today is hubby's birthday.

We celebrated last night.


Friday, April 25, 2014

Baby Wearing

One of many things we learned with Dan was that strollers don't fit everywhere and being able to carry him became very important.

We had an Infantino carrier with Dan and neither one of us liked it and we really couldn't get comfortable in in.

So when Shelby was born I went looking for a wrap style carrier to carry her around in. I didn't want to spend a lot of money because I didn't know if I would really feel comfortable. I also knew that we would be traveling around alot due to Elks commitments, so carrying her was going to be very important.


Thursday, April 24, 2014

Do you know what today is?

Today, April 24, is Take Your Child to Work Day. Bet you didn't know that. You may have known it as "Take Your Daughter to Work Day". This day is always the 4th Thursday in April.



This is the 21st year of the program. This year's theme is "Plant a Seed, Grow a Future".

Tuesday, April 22, 2014

Monday, April 21, 2014

5 for Five - April 21



So what is 5 For Five? In the short form, it is 5 goals you want to achieve this week. Next week, I will report on my success (or failure).

Here were the goals from last week:

Thursday, April 17, 2014

How Paper Can Be Upsetting

Another round of tears tonight.  This time it wasn't Shelby.  It was a piece of paper.


Wednesday, April 16, 2014

Tears of Joy and Sadness

I knew this was going to happen. And I know it won't be the last time it happens. Actually, I'm sure it will happen quite a bit more.

Watching Shelby explore and learn brings tears to my eyes.


Tuesday, April 15, 2014

Easter is Almost Here!

For me, Easter is the beginning of Spring. Yes, I know the calendar said it was spring a few weeks ago, but here in the Northeast, that doesn't mean much when we can still get cold and snow.

But Easter is usually in mid-April. And by then most (if not all of the snow) is gone, and the weather is starting to warm up. We can open the windows and sit outside. Some of the early season flowers are starting to grow. So for me Easter means spring.

Monday, April 14, 2014

5 for Five - April 14



So what is 5 For Five? In the short form, it is 5 goals you want to achieve this week. Next week, I will report on my success (or failure).

Here were the goals from last week:

Friday, April 11, 2014

Let's Make Aug 30 National Grief Awareness Day

Angie Cartwright from Good Grief Worldwide and Grief The Unspoken is trying to make August 30 National Grief Awareness Day.  This day is designed to increase awareness and education of grief of all types, not just child loss.  (There is another day for child loss.)

Wednesday, April 9, 2014

What an Elks Year!

It was about this time a year ago I was writing about the honor my husband received being elected Exalted Ruler (CEO) of our local Elks Lodge.

His term technically ended on March 31, however the official ceremony installing the new Exalted Ruler was on Sunday, April 6.

Here are some highlights from the past year:

Monday, April 7, 2014

5 for Five - April 7



So what is 5 For Five? In the short form, it is 5 goals you want to achieve this week. Next week, I will report on my success (or failure).

Here were the goals from last week:

Saturday, April 5, 2014

Mommy wants to sleep!

I have had 7+ months of sleeping bliss.  My beautiful girl has slept great, even in the hospital~ 10-12 hours a night.

Until recently.

Thursday, April 3, 2014

It's Tax Time!

You hear this old saying alot this time of year:
there is nothing certain except death and taxes
There are less than 2 weeks left to file your income tax returns for this year.

Wednesday, April 2, 2014

Are you a bike rider?

On Saturday, May 3, 2014 there is a Million Dollar Bike Ride to benefit world-wide rare disease research. This bike ride is on the University of Pennsylvania campus in Philadelphia.