A blog about the grief after losing a child to Niemann Pick, Type C, a rare disease, and how I'm moving forward with my life.

Friday, October 11, 2013

Siblings are Affected too!

Lauren Grodin (Phy.D.), a current member of the  NNPDF Board of Directors, brings a unique perspective to the conversation around NPD Awareness month, as she is a loving NPD sibling as well.

Her brother, Scott Marocco, lost his fight with NPC on June 6th, 2000 at the age of 13. 

Dr. Lauren Grodin is a licensed psychologist who specializes in working with children, adolescents, and their families. She is experienced in providing comprehensive evaluations and treatment interventions to assist youth and their families coping with behavioral and emotional concerns, medical conditions, and learning and developmental disabilities.

In August 2013, at the 21st Annual Family Conference in Baltimore, MD, Lauren presented a breakout session to our NPD families in attendance detailing how growing up with Scott influenced her life.

Please find links to her PowerPoint presentation, session notes and biography below.
Life with Scott: How Niemann-Pick Changed My Life
Presentation Notes
Lauren Grodin's Biography

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